Showing posts with label Forums. Show all posts
Showing posts with label Forums. Show all posts

Wednesday, July 16, 2008

F.E.A.S.T

Families Empowered and Supporting Treatment of Eating Disorders
http://feast-ed.org/

This is the synopsis from the website: "FEAST is a nonprofit organization of and for parents and caregivers to help loved ones recover from eating disorders by providing information and mutual support, promoting evidence-based treatment, and advocating for research and education to reduce the suffering associated with eating disorders."

This is a new organization supporting the families of children with eating disorders. I am already a member. There is a wealth of information and support available on the site. They have links which include services, research, insurance, treatment resources, and a support forum for parents and other caregivers. They are poised to be huge advocates for change in both political and media arenas.

In some ways, the FEAST website is a lot like I hope to see this site - a compilation of the best information and support out there.

Friday, March 21, 2008

B-EAT

http://www.b-eat.co.uk/Home

Based in the UK, this is an eating-disorders advocacy site. It includes general information, financial guidelines for treatment in the UK as well as a message board for carers & parents (http://www.b-eat.co.uk/HelpandSupport/MessageBoards/Carersmessageboard). It also includes boards for sufferers.

Saturday, March 1, 2008

Something Fishy

http://www.something-fishy.org/

I haven't explored too much of this site. The website seems to be more geared towards sufferers, but does have some information for parents. I spent most of my time in the parent forums. I found a lot of support from parent to parent, but it wasn't a highly active community. I also noticed that a lot of the parents there were not very involved in their children's recoveries. It seemed like a lot of the treatments those parents talked about, still involved blaming the parents or convincing the patient to want to eat.

This is probably a good place to find support, as long as you do so with your eyes wide-open.

Friday, February 29, 2008

Around The Dinner Table - Parent Support Forum

http://aroundthedinnertable.org/
I credit this parent-support forum for saving my son. So, please forgive my bias here. When my son was first diagnosed, I had almost no information about treating him. I had only what my son's very unaware pediatrician and his therapist to give me any information. We have loved our therapist, but even he wasn't up-to-date on the eating disorder's field. Our son's weight continued to decrease and his health continued to decline. I found this forum in mid-November, and started to learn about the current research on treating anorexia. We immediately changed the treatment approach. Within a week of finding this site, we found hope for the first time as my son began to recover.

It is a straight-forward forum with parents from all over the world. It is a moderately active community. If I post a question, I usually have several responses within a couple of hours. Laura Collins, author of "Eating With Your Anorexic" is the moderator of the site. She doesn't allow sufferers to post and seems to watch over the forum carefully. The parents are highly supportive. Exchanges are very warm and there is no blame cast. There are several parents (including Laura), whose children have recovered, that frequent the site. Their ideas and perspective are invaluable. This forum highly advocates working as a family to help your child to recover. They also explore current research and discuss changing inaccurate perceptions of anorexia.